"Suffering the Slings and Arrows of Outrageous Fortune"

So we need to be at Reid Hospital by 8:30 to be ready for the MRI at 9. Not sure what will be found. I wouldn’t be a bit surprised if nothing whatsoever is found. Then again, they might find something of interest because something is clearly going on. Today was another bad day – I woke her up at 2:30. She went directly to my bed because she couldn’t stand light or sound and couldn’t sit up because she was so dizzy. She went back to sleep until 4 and it took me until almost 5 to get her woke up. She ate a decent supper but the nausea was a problem all day. She was starving but couldn’t eat much the rest of the evening. She ate a bit of  ice cream.

We were ‘introduced’  (via FB) to another family whose daughter not only has Chiari but EDS also. That is a good thing and I am looking forward to speaking with them.

Tomorrow will be a long day – whether it is productive or not remains to be seen!

Advertisements

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

%d bloggers like this: