So we need to be at Reid Hospital by 8:30 to be ready for the MRI at 9. Not sure what will be found. I wouldn’t be a bit surprised if nothing whatsoever is found. Then again, they might find something of interest because something is clearly going on. Today was another bad day – I woke her up at 2:30. She went directly to my bed because she couldn’t stand light or sound and couldn’t sit up because she was so dizzy. She went back to sleep until 4 and it took me until almost 5 to get her woke up. She ate a decent supper but the nausea was a problem all day. She was starving but couldn’t eat much the rest of the evening. She ate a bit of ice cream.
We were ‘introduced’ (via FB) to another family whose daughter not only has Chiari but EDS also. That is a good thing and I am looking forward to speaking with them.
Tomorrow will be a long day – whether it is productive or not remains to be seen!