"Suffering the Slings and Arrows of Outrageous Fortune"


Em’s condition has improved slightly, but she is still not doing well.

She went to co-op on Friday for a couple hours. I know she needed to get out of the house and see her friends and feel like she has a life, but even a couple hours was too much. She slept very little Thursday night and was exhausted all day. She managed though, so I guess she got a little benefit out of it. She did pay for it – she felt absolutely awful Friday evening. Fell asleep at 8 and slept through til 5:30.

Since Friday, she has been eating and sleeping more normally. The nausea has reduced some so she can eat without the nausea being unbearable afterwards. And she is sleeping more at night and less during the day. The headache and neck pain are still bad. And she is having hiccups frequently. Apparently, hiccups can be a symptom of Chiari, so I don’t know if it means anything or if it is a coincidence.

Not sure if she is really better or if she is just having a couple good days. Even when the good days are few and far between, we take them gladly. Any reduction of the pain is a good thing. But, as usual, I am waiting for the shoe to drop. We just need to make it until the 14th…


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