"Suffering the Slings and Arrows of Outrageous Fortune"

Spoke too soon

I shouldn’t have been so quick to state we had the sleeping issue under control yesterday. You would think I would learn!

Last night, Em was in terrible, terrible pain – even after all of her meds – and didn’t fall asleep until 7 am. 7am! The storms didn’t help – she does tend to hurt more when the weather is bad and certainly the noise kept her awake. She was absolutely miserable and just couldn’t fall asleep.

I just don’t know what to do for the poor kid. Her neck and head were seriously hurting, and I think her autonomic dysfunction was acting up. She was overheating, nauseated and dizzy. Those symptoms do tend to correlate with the severity of her headache. She tried the cervical collar but it tends to make other things worse – her jaw, teeth, back suffer when she wears it. So it is a matter of weighing the benefits at any given moment.

If we could just get her some decent sleep… And I know it is not just poor sleep habits – she can be awake all night and still not sleep the next. Or vice versa – sleep all day and still sleep that night. It is the pain that keeps her up and that is so frustrating.

Also frustrating: the fact that we are in another holding pattern until we get to the next round of testing and ruling out/ ruling in phase.

*Sigh* I have a feeling we should expect more long nights in our future….


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