Last night, after Em took the Diamox for the first time, it was a little like waiting for a stay of execution. Would it really work? Would it dehydrate her? Was this the answer or just a dead end? I started doubting that it could really help like I thought it would. A miracle just couldn’t really happen. What if all those doctors who said no were right and I was wrong?
She took the medicine at 10:00. At midnight she told me not to freak out, but her head was feeling better and she wasn’t so dizzy. She said her headache was a 4, when it had been an 8 or 9. At that point, I started breathing a little easier and stopped second guessing myself.
This morning when she got up, she said that her headache wasn’t gone completely but it was a 2. For more than 2 years, her headache has been at least a 7, usually more, all day, every single day. Reducing to a 2 seems like a miracle in and of itself but it will only get better.
Then I asked about her blurred vision – since sometime this spring, when she turns her head to the left, her right eye blurs; when she turns to the right, her left eye blurs. (This fact has freaked out a number of doctors and had them thinking it was caused by cervical instability impeding the arteries to the brain, which is why we were on our way to a fusion.) Well, this morning she turned her head and her vision didn’t blur.
I think we are on to something. She only took a small dose last night – 62.5 mgs. We will probably try the 125 mgs to see if that gets rid of the headache altogether. We can fiddle with the dose until we get it just right.
But, we are definitely on the right track. We will keep an eye on her and push fluids so she doesn’t get dehydrated – but I am not terribly worried about it at this point.
So, I guess we got the stay of execution after all. I am thinking that a cervical fusion is looking less and less likely. And a life with less pain is more possible. That is really a miracle. Gotta thank God and Dr. Diana! (Go to prettyill.com and check the theory and videos!)
Today is a very good day and those have been awfully scarce in the last two years.
[Regarding the tilt table test, I talked to the pain clinic and they have advised on how to titrate the amitriptyline down (and back up) safely over a few days, so Em won’t be off it for too long. It is frustrating because we are just getting to a good level and getting good results from it, but I think we can handle a few days off. The test has been rescheduled for next Tuesday, so that is all working out well.]