So, I need to record this kind of Weird Thing just so I don’t forget about it. I don’t even know if it is important in any way or not, or if it could be helpful for anyone else, but this is one reason I blog, so here goes…
Em and I went to see Les Mis this afternoon – we seem to be between viruses in our house today, stomach virus last week and a cold that we will probably all have this week, so it seemed like a Carpe Diem moment. We have been wanting to go forever; no self respecting theatre nerd/ musical fan could not see it and Em has a lofty goal to audition when our local theatre does Les Mis this fall. (That announcement is fodder for completely different post) So, obviously, we had to go before it was no longer in theaters. Going to a movie is always kind of a big deal for her- the headache, light and noise sensitivity and fatigue are always an issue, but sometimes it is worth the effort.
Anyway, when the movie was over, the lights came up and the credits were rolling, Em complained of a terrible headache – nothing new in and of itself. Although, her complaining about it, was a little out of the ordinary. Then, she kept saying that her temple, down her cheek felt wet and cold, but there was nothing there – it was totally dry. And her occipital region around to behind her ears felt extremely tight. On the way to the car she complained about feeling very dizzy. She didn’t think it was muscular – there are definitely muscular issues with her neck, so she knows the difference between that and pressure and whatever else goes on.
We stopped for a bite to eat on the way home and when I got to the table with our food and sat down to dish about the movie, I noticed that her eyes were very dilated… Almost as dilated as when the eye doctor dilates them for an exam. Now, it wasn’t terribly bright where we were sitting but it was not dim either – she was even facing the light behind and above me. And, they remained dilated the same amount the whole time we sat there – maybe 20 minutes. (It is probably worth mentioning that in the 2 years she has been dealing with the neurological symptoms, I have never noticed her eyes dilated abnormally.)
By the time we got home, her eyes were normal, she wasn’t as dizzy as before and her headache was less noticeable – although she still complained of the tightness around her head.
My theory – I always have a theory – is that the position she was holding her neck in while watching the movie messed with the CSF flow and resulted in the unusual signs/ symptoms. And, on the way home, she relaxed and everything went ‘back to normal’. I am probably not explaining that very well, but it is late and that is the best I can do at the moment.
By all means, go see Les Mis – it is fantastic. And, if you have any input on the weird symptoms Em displayed tonight, I would love to hear it!