"Suffering the Slings and Arrows of Outrageous Fortune"

As I mentioned in my previous post, my daughter and I are writing a faith based book that we are hoping to have published. This book focuses on mostly the emotional aspects of living with chronic illness, although some practical advise is shared. It is aimed at chronic illness in general and not only EDS.

We are in the final stages of getting the book ready to submit and I am doing a bit of research that you can help me with. (I have a few future projects in mind as well, including a companion journal that could accompany our current project. This journal would include recommended reading (by me), inspiring/encouraging songs (recommended by Em), and activities/exercises that expand on the topics covered in the book.)

All you need to do is take a moment and answer the questions in this poll if you are affected by chronic illness. The more responses I get, the better!

Thanks in advance!

Check all that apply:


Comments on: "Please Take This Poll" (1)

  1. Paola B said:


    The Anatomy of Hope by Jerome Groopman MD is very helpful in encouraging a positive outlook in the face of debilitating illness.

    I have EDS, POTS, lupus, arachnoiditis and a propensity to huge DVTs. Life has shrunk from global to the four walls of my bedroom. Pain defies description and the number of medical specialists/appointments/complicationsdrugs are embarrassing to discuss, but are my life now. The need to overcompensate for my limitations has horrible consequences. Patterns are hard to break. The practicalities of physically coping are always useful to be reminded of, but the void is how to cope with the psychological aspects within spiritual constructs…I don’t mean religion, but something more universal and profound.

    I await your book eagerly!

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