"Suffering the Slings and Arrows of Outrageous Fortune"

Posts tagged ‘convergence insufficiency’

Bits and Pieces

You may remember our disastrous appointment with the ophthalmologist a year ago – it was frustrating and unexpectedly traumatic. [Which was totally ridiculous, because, come on, it was just an eye exam, for cryin’ out loud. How can that possibly go wrong? Sadly, it went very wrong.]

We made a follow-up appointment before leaving that day, but I was livid and really never wanted to see Dr. H again. I drove away swearing that we would never darken his door again – I had every intention of cancelling the appointment. Then stuff happened, like an appendectomy and worsening GI symptoms and all of a sudden, it is a year later and that follow-up appointment was looming. 

As usual, I worried myself into a tizzy about it… as an EDSer, Em needs an annual eye exam (especially after her little eye escapade this fall – the doctor we saw then, Dr. M, said she didn’t have to be seen again if her symptoms resolved completely, but to absolutely get to her yearly check up that was scheduled with Dr. H). I couldn’t go to the scheduled appointment but I couldn’t not go. I  didn’t have anyone else to take her to but I was convinced that it would be a major issue to switch from Dr. H to Dr. M since they are in the same practice. I procrastinated until a couple of days before the appointment, until I had to make a decision or just suck it up and go.

Finally, I bit the bullet and just called, deciding I would either finagle an appointment with Dr. M or just tell them to cancel altogether.

In the end, it was utterly anti-climatic: they said, ‘Sure, we can make that appointment. How about the 21st?’ And I felt like a dweeb for getting so worked up about it.

So, we have an appointment with a doc that we like [ please don’t have to remind me that we liked Dr. H too at first] and, with any luck, we never have to see Dr. H again. It would be lovely if Dr. M doesn’t have a God complex or pretend he is an expert on EDS when he obviously isn’t or give us crap about Em being on Diamox or give horrible advice that he would NEVER apply to his own child. And if he were to take our concerns about convergence insufficiency seriously, all the better. Whatever we end up with, I don’t think he could possibly be worse than Dr. H. [I know, it is tempting fate to say that, but seriously, he CAN’T be worse, he just can’t be…]

And in totally unrelated but also good news

Andrew has recovered well after his surgery and has been cleared to go back to work. With luck, this surgery should last him another 15 – 20 years before anything else needs to be done. He is able to walk with little to no pain; in fact, very quickly after surgery, he was able to walk far better than he could before the surgery. Now he can walk without limping and has far better stability, so the surgery was definitely a success.

 

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The answer was right in front of us all the time. Hopefully.

Funny story.

Wait – a little background first:

I think I have mentioned that Em has struggled with her vision for quite a while. At first, I just chalked it up to normal EDS stuff and really didn’t know how much it impacted her. But it seemed to really cause her more issues as time went on. I was convinced that she had accomodation issues but didn’t know where to go from there. Thanks to Stephanie, at Everyday Chaos, I was introduced to the term convergence insufficiency and absolutely knew that was what Em had and that it could be treated. I just had to make it happen, somehow.  Then the opthamologist we saw was an idiot and totally blew off my concerns and then Em’s appendix decided to go postal, leading to emergency surgery that led to months of recuperation and other serious concerns. Bottom line, the vision issues haven’t gone away, they just got put on the back burner for awhile.

Now… funny story…

Yesterday, while we were having Em’s wheelchair assessment, I couldn’t help but notice the vision therapy equipment sitting around the room, which I recognized from my research into convergence insufficiency. I tried to keep my mind on the wheelchair discussion, but was asking myself – do they really do vision therapy here? As I mentioned in the previous post, this is a building I have spent considerable time in – as the wife of an employee and as the mother of a patient. I thought I knew about the services offered and SURELY my husband, as an employee who has worked there for 16 years, would have known if vision therapy was available through Reid Rehab. Right?

So, as we concluded the appointment, I asked the question that had been on the tip of my tongue the whole time. ‘Do ya’ll do vision therapy here?’ Rick said, yes they do and any doctor can refer us. Then the million dollar question flew out of my mouth – ‘Does Andrew know this?’ Poor Rick, as Em said, he got a deer-in-headlights look that I interpreted to mean he knew Andrew was going to be in trouble if he said yes. Although, in retrospect, it is entirely possible that it actually simply meant he thought I was nuts.

Anyway, turns out Andrew really didn’t know about the vision therapy or that there is an optometrist who does free screenings once a month. (In his defense, Andrew is not a pediatric therapist and works primarily with the geriatric population.) So, the answer to Em’s vision problems literally might  have been right in front of us this whole time. Andrew is going to run down info about how to get her screened and see what we need to do about getting her vision therapy.

Ironic that a 30 minute wheelchair assessment could solve both her mobility issues AND her vision issues. Reid Rehab really is very efficient!

 

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