"Suffering the Slings and Arrows of Outrageous Fortune"

Posts tagged ‘awareness’

Complex Child Article

I have been quiet on here but our life is not at the moment. If that sounds slightly ominous, that is because it pretty much is. *Sigh* I will go into detail soon…

I have several posts I need to write and get up in the near future, but I want to take a few minutes and share this exciting (to me at least) information now. I recently wrote an article for the Complex Child E Magazine that was published in this month’s edition. The September edition is Bone, Muscles and Joints and that seemed a perfect opportunity to share info about EDS and raise some awareness. The article is basic information about EDS and explains why early diagnosis is so important. My goal was to pack as much detail about EDS in as possible so anyone who was not familiar with it would come away informed and more likely to connect the dots.

I had never heard of this website previously, but I am glad I have and I am happy to share it here as a useful resource. I think it is a great resource for parents of medically complex kids – there are many articles there by parents and even by kids themselves. Lots of great information  and I encourage you to take a look at the many helpful articles there. And, I would also encourage you to consider writing your own article and submitting for inclusion in a future edition. (The editor, Susan, was a pleasure to work with so don’t be intimidated!)

So, please go have a look at my article: Living with Ehlers Danlos Syndrome but do make sure you read the whole edition as well and check out their archives of previous articles.

I hope you enjoy it and I feel fortunate to have had the opportunity to have educated others about EDS! If you want to come back and leave a comment with feedback about the article, that would be awesome!

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